Seizure Support Foundation is a health – and education – based non – governmental organization in Nigeria. We are committed to providing support, education and advocacy for children and families affected by neurological impairments like Autism Spectrum Disorders, Seizure Disorders, Cerebral Palsy and Down’s Syndrome.
Seizure Support Foundation’s primary goals include providing educational and health-based support and resources to children and families affected by neurological impairments, increasing awareness and understanding of neurological impairments and learning disabilities.
Through our programs and activities, we empower children and families battling with neurological impairments, especially those from underprivileged backgrounds.
The organization is governed by a board of directors and staffed by a team of dedicated professionals and volunteers who share a common vision of seeing a more inclusive society where individuals with neurological impairments can live independent and productive lives.
Seizure Support Foundation (SSF) was established to address the needs of children and families affected by neurological disorders, particularly in Nigeria.
Seizure Support Foundation is inspired by the healing of the epileptic in Mark 9:24-27, where Jesus stretched out His hand to lift the child up. Our logo reflects this mission, depicting a stronger personality lifting up a weaker one on a global scale.
At SSF, we are committed to giving our time, resources, and expertise to uplift these children and their families, with a vision that extends beyond Africa to impact lives around the world.
Vision
Seizure Support Foundation envisions a society where independent and productive living is possible for individuals challenged by neurological impairments.
Mission
Our mission is to systematically bridge information, education and treatment gaps caused by social and educational exclusion of children with neurological impairments.
STRATEGIC GOALS
- Raise awareness and education about neurological impairments by educating the public, school and communities about the condition and support strategies
- To enhance access to resources, support services and information for individuals with neurological impairments and their families.
- Enhance medical services and treatment options.
- Foster community engagement and inclusion.
- Advocate for policy implementation and legislative changes that promote the rights and the wellbeing of individuals with neurological impairments.
- Establish partnerships and collaborations with other organizations, healthcare providers, educational institutions and community stakeholders
CORE VALUES
Compassion, Education, Advocacy, Support, Empowerment, Collaboration, Inclusivity, Accountability, Hope.
THEMATIC AREAS OF FOCUS
- Education and Teacher Training
- Awareness and Advocacy
- Community Outreach and Medical Aids
STATEMENT OF PROBLEMS
- Educational Exclusion of children with neurological impairments. In Nigeria, children with neurological impairments regularly face significant educational exclusion and limited access to quality education. This gap is even wider with children from under deserved backgrounds. Several factors contribute to this issue including general lack of awareness and understanding of neurological impairments; lack of adequate educational infrastructure and resources especially in the rural areas; shortage of trained special education teachers and other support professionals and lack of adequate and reliable data on children with neurological impairments in Nigeria.
- Social exclusion of children with neurological impairments. This can be attributed to several factors including lack of awareness and understanding about neurological impairments which has led to misconceptions, stigma, stereotypes, social discrimination, isolation and marginalization of children with neurological impairments. Cultural beliefs and superstition further exacerbates this problem. Children from low – income households may face additional barriers to social inclusion due to limited financial resources, poverty and limited social networks.
- Healthcare and treatment gaps. Nigeria faces significant challenges in terms of healthcare infrastructures and quality healthcare delivery. This is due to shortage of healthcare facilities, specialized clinics and trained healthcare professionals; inadequate diagnostic and screening facilities; limited availability of specialized and supportive care, poverty and financial constraints coupled with very high cost of healthcare. Inadequate and inequitable distribution of healthcare resources including medications, medical equipment and therapeutic interventions are also implicated.
- The lack of adequate and reliable data on children with neurological impairments in Nigeria is a significant challenge. This is because it poses various obstacles to understanding the scope of the problem, developing targeted interventions and monitoring progress in addressing the unique educational needs of these children. There is a dearth of accurate national and subnational prevalence data and medical records of children with neurological impairments such as autism, cerebral palsy, seizure disorders and down’s syndrome. This hampers efforts to allocate resources, design appropriate policies and provide targeted support.
Donate
Here are some ways to donate
Make cash donations to Seizure Support Foundation
(Local transfers)
Account details:
Keystone Bank
1012250588
Seizure Support Foundation
Donate medical supplies, equipment and drugs to Seizure Support Foundation
Part of Seizure Support Foundation’s mission is hinged on systematically bridging treatment gaps and alleviating sufferings. This is to ensure children from poor socioeconomic backgrounds have access to medications they need through your donations. Kindly contact us via email info@seizuresupportfoundation.org to discuss the modalities and the Nigerian legislation as regards donation of medicines and related resources. Click to see the list of medical items we need
Donate special educational materials and resources to Seizure Support Foundation
Seizure Support Foundation also works to bridge educational gaps in tackling exclusion of children with learning disabilities. In–kind donations of special educational materials will support our organization’s ongoing scholarship program; “The Seizure Disorder and Learning Disability Project”. The SDLD project is one of our non–financial scholarship programs that involves subscribing to and providing access to special education online pedagogy, sensory equipment and electronic tablets to students with special needs. Kindly contact us via email info@seizuresupportfoundation.org to discuss the modalities. Click to see list of educational items we need
How You Can Help
1
Corporate Partnerships
Seizure Support Foundation regularly requires partnerships from both foreign and local companies for funding and donations of medical & educational materials, as well as trainings.
Thanks to the generosity of companies like yours, we have been able to support a child in 2022, with two-month worth of medical prescriptions. We are hopeful that more support and funding in the coming year will increase our capacity to support more children in need of access to healthcare.
Our partnerships are mutually beneficial and we will help you actualize your corporate social responsibilities. Kindly contact us via email info@seizuresuportfoundation.org so we can discuss the modalities
See policy on Corporate Partnerships
2
Individual Partnerships
Seizure Support Foundation is fortunate to have support from a network of individuals and professionals like general practitioners, nurses, physiotherapists, occupations/speech therapists, psychologists and special educators.
Our supporters donate time, energy and expertise to support our various activities and projects. Click here to register as a professional
See policy on Individual Partnerships
3
Volunteering
Seizure Support Foundation is looking for enthusiastic volunteers (Seizurecare Champions) who are passionate about educational and social inclusion of persons with intellectual disabilities; to help raise awareness and funds for the organization, especially their respective local areas.
If you are looking to volunteer your time to support the Seizure Support Foundation, please get in touch with us via email Elizabeth@seizuresupportfoundation.org or fill out and submit our volunteer form. We are excited to meet you!
See policy on Volunteering
1
Corporate Partnerships
Seizure Support Foundation regularly requires partnerships from both foreign and local companies for funding and donations of medical & educational materials, as well as trainings.
Thanks to the generosity of companies like yours, we have been able to support a child in 2022, with two-month worth of medical prescriptions. We are hopeful that more support and funding in the coming year will increase our capacity to support more children in need of access to healthcare.
Our partnerships are mutually beneficial and we will help you actualize your corporate social responsibilities. Kindly contact us via email info@seizuresuportfoundation.org so we can discuss the modalities
See policy on Corporate Partnerships
2
Individual Partnerships
Seizure Support Foundation is fortunate to have support from a network of individuals and professionals like general practitioners, nurses, physiotherapists, occupations/speech therapists, psychologists and special educators.
Our supporters donate time, energy and expertise to support our various activities and projects. Click here to register as a professional
See policy on Individual Partnerships
3
Volunteering
Seizure Support Foundation is looking for enthusiastic volunteers (Seizurecare Champions) who are passionate about educational and social inclusion of persons with intellectual disabilities; to help raise awareness and funds for the organization, especially their respective local areas.
If you are looking to volunteer your time to support the Seizure Support Foundation, please get in touch with us via email Elizabeth@seizuresupportfoundation.org or fill out and submit our volunteer form. We are excited to meet you!
See policy on Volunteering
Letter to Partners
“Dear Partners,
We want to sincerely thank you for your generous donations and support to Seizure Support Foundation. We want you to know that we are able to keep afloat because of the amazing support of people like you. We value your support, whether it’s by donating your time, expertise, relationships or funds, we are committed to ensuring we treat you with utmost respect and be accountable to you. We promise to responsibly administer your generous donations in supporting our work. We will keep administrative costs to a basic minimum so as not to jeopardize the quality of Seizure Support Foundation’s work. In order words, much of your donations will be spent directly on our objectives.
We are open to answering any questions you may have about how your donations are being spent and clear financial information will be made available. However, as a matter of policy, we share our organization’s financial statements to partners at the end of every fiscal year. Be informed that we may respectfully turn down a donation if we feel that accepting it would mortgage our independence or reputation. If we do, we will definitely give you reasons for our disapproval. Finally, you can contact us via email info@seizuresupportfoundation.org and we will be happy to respond honestly and promptly to your questions. Thank you!”
Seizure Support Foundation’s Organizational Structure
Seizure Support Foundation’s operations are overseen by a governing structure that is made up of the Board of Directors, the Executive Director, Heads of units and volunteers. Our Board of Governors exercise effective governance through policies and internal systems of rules and regulations that describe their roles and responsibilities. The three – member Board of Directors are responsible for establishing guidelines for the working of the organization. Seizure Support Foundation runs its activities and projects through the following units: ICT, Public relations, Finance and Accounting, Human Resources, Operations and Monitoring & Evaluation. These units are overseen by unit supervisors who see to the daily operations of units and report directly to the Executive Director. Each unit is populated by volunteers who are enlisted to offer services voluntarily.
Dr Chiagorom Chiggy Nnenna
Dr. Frank Onyekachi Ani
David Odufisan
Barrister Nkemjika Ani
Elizabeth Uju Okonkwo
Dr. Stella Azuka
Contact
Thank you for Taking Interest in our Work
For queries and enquiries, please fill out this form and a member of our team with respond shortly
Send us an email info@seizuresuportfoundation.org
To make a donation, please visit our donation page
Contact
Email: info@seizuresuportfoundation.org